Next Kids MG support Group Meeting April 2024!

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"Hello, my friends!"

At "You Can't See My MG," we understand the challenges faced by medical moms & caregivers who care for children diagnosed with Myasthenia Gravis (MG). Our up and coming nonprofit organization is dedicated to providing support through the Kids MG Support Group Meetings designed to provide the kids living with MG access to their community. Allowing our kids to make connections with each other to help support their journey, and show them they are not alone. We highlight resources offered through Myasthenia Gravis Foundation Of America (MGFA) and a helping hand to navigate the complex journey of MG diagnosis and treatment in a child.

Parent Advocate Volunteer,

Shanika


What is Myasthenia Gravis?

This rare neuromuscular, autoimmune disorder causes extreme fatigue and profound muscle weakness. The body's antibodies block impulses from the brain to the muscles, leading to difficulty in performing everyday activities such as walking, swallowing, and even breathing.

Myasthenia gravis is an autoimmune disease, which means it arises from an abnormal immune response. The immune system mistakenly targets and attacks specific receptors on the muscles responsible for voluntary movement. The underlying mechanisms that trigger autoimmune diseases are complex and not fully understood. While autoimmune disorders are collectively common, each individual autoimmune condition tends to be rare.

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Educate Yourself & your kids

Learn as much as you can about Myasthenia Gravis. Understand the symptoms, treatment options, and the challenges faced by MG patients. This knowledge will help you advocate effectively and spread awareness.

How We Can Make a Difference

Raise Awareness

Use various platforms to raise awareness about MG. You can start by sharing post like this on social media.

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Support MG Organizations & Fundraisers

Offer your assistance as a volunteer, donate to their cause, or participate in fundraising events to support research and patient programs.

The journey to change the world starts with awareness and support. Any items purchased supports our MG families by providing them with a free medical planner and awareness t-shirts.

Make a Purchase

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Raise Awareness

See what our sponsors and community members have to say

"YCSMMG was a total rockstar, sharing their own MG journey with empathy and kindness. It meant the world to connect with someone who truly understood what I was going through. Plus, my daughter loved chatting with another kiddo her age who was already on treatment. It was a comforting experience for us both!" - Brittany, proud MG parent.

Providing the Caregiver Medical Planners to newly diagnosed parent caregivers provide direction on what and how to track & communicate so many important details about their child's health to their care team of specialist. This can bring order to a new crazy world for the parent of a child with newly diagnosed MG.

-MediMom's, Sponsor since 2023

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Shanika, Medical Mom, Advocate, volunteer and businessowner


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This project is very close to my heart, it's my therapy and a way to handle the challenges of being a medical mom.

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BUT TO GET THERE, IT WASN'T EASY...

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Appointment Re-Cap

Annual

Appoinment

Phone Log

After each appointment, consolidate key takeaways. Recap discussions, treatment adjustments, and action plans, ensuring everyone involved is on the same page.

Document outgoing calls, reason for the call, return call notes or follow-up calls to complete setting up an appointment or confirming referrals, authorizations or labs.

Never miss an annual appointment with the tracker set in the front of your caregiver planner.

IS THIS PRODUCT FOR YOU?

No

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If you have mastered the Art of Scheduling with a Snap.

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If you have rare occasional appointments once or twice a year.

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With a simple wall calendar, you can handle your five yearly appointments with ease.

YES

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Double-booking much? Are you scheduling appointments on days with existing bookings?

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Did you accidentally land in physical therapy when you were meant to be at oncology?

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Did the appointment get lost in translation and end up on the wrong date?

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SOME OTHER COOL THINGS ABOUT THIS

Get ready to go paperless! Every download is a sleek PDF, ready to jump onto your iPad or tablet for on-the-go convenience.

Whether digital or print, it's a perfect fit.

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Evergreen templates you can use over and over again

Meet the partners who help us transform lives

Businesses, nonprofits and fellow foundations have given their time and support to help us make a difference in children's and their families lives.

Medimom Caregiver Planners

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